SCI Research

Where can you find the latest in SCI Research?

Spinal Research is the UK’s leading charity funding medical research around the world to develop reliable treatments for paralysis caused by a broken back or neck.

 

The UK Spinal Cord Injury Research Network promotes and organises multi-centre clinical research with spinal cord injured people to improve their health care and well being.

 

 

 

The Mayo Clinic is involved in SCI research.

 

Take part in current research...

 

Barriers to Sport and Physical Activity

Nuffield Orthopedic Centre, Oxford

14/04/10 - I am a Sports and exercise doctor looking at the reasons behind why people may find it difficult to participate in sport or physical activity. We are interested in hearing your views on any physical barriers such as transport, accessibility or personal issues that make activity more difficult. The aim of the study is to highlight any problems and make recommendations to the health authority for improvements. If you would like to help us, please email katehutchings@doctors.org.uk for a short questionnaire. All responses are confidential and can be anonymous.

 

SMILE Study

Spinal Cord Injury Measure for Intermittent Catheter Users: Quality of Life Evaluation

12/04/10 - A research team at Brunel University, West London is trying to find people who use intermittent self-catheters as a result of neurological damage to their spinal cord who would be willing to take part in their study.

When new catheters are developed, catheter manufacturers and doctors want to know whether the bladder management and quality of life of people using the catheter is improved. The aim of the SMILE study is to develop a set of questions about bladder management and quality of life that are based on what people with say is important to them.

The research team is asking people with spinal cord injury and other neurological conditions, who use self-catheterisation as their main method of bladder management, to complete an online questionnaire. They will examine the information using a number of established methods, including some statistical analysis, to see whether the questions work together effectively and accurately to measure quality of life.

A small donation will be offered to the Spinal Injuries Association for each completed questionnaire.

Please take the survey here

 

Carers need for and experience of replacement care services

Do you care for an adult aged 18-65 years old with a spinal cord injury? 

Would you like to influence change in services that allow carers to take a break?           

12/04/10 - If the answer to both of these questions is "yes" then we would like to hear from you. We are a team at King's College London and have been commissioned by the Department of health to find out about carers need for and experience of replacement care services (also known as respite care). We would like carers to complete a survey to help us do this. If you are interested further details are available at the Kings College London website
Or else please contact David Williams on 020-7848-5418 or at kclcarestudy@kcl.ac.uk or write to (there is no need to use a stamp):

Freepost RRLJ-JXEA-HYAS,

LTNC Care Study,

King’s College London

Palliative Care, Policy, and Rehabilitation,

Weston Education Centre,

Cutcombe Road,

London, SE5 9RJ