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Useful Links

View links to organisations where you will find further support and information.

To search a more extensive collection of useful websites, visit the SIA National Library on SCI online catalogue here .  We also have a list of websites in our SIA Community Section that have been developed by SIA members.

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

 

The Accessible Planet
This site provides a resource of accurate information on anything and everything accessible to wheelchair users and ultimately the community of Disabled People at large.

Airport guide  
The full name of this helpful online guide is the Disabled and Reduced Mobility Airport Guide.  It is available through the Parkat website and contains helpful information for disabled people planning to travel by plane.

All About Equipment  
Quick and easy links to information about equipment for disabled and older people.

The Ann Conroy Trust and Syringomyelia
The Ann Conroy Trust is the only organisation in the UK providing educational material about Syringomyelia. It funds vital research work and provides a national helpline and support network which includes qualified support counsellors for sufferers and their carers. A national branch network putting sufferers in touch with each other is expanding across the United Kingdom. The Ann Conroy Trust sees the dissemination of knowledge about these conditions amongst health professionals as one of their principle aims.

The Association for Continence Advice (ACA)
This is a multi-professional association open to all health and allied care professionals and to those who have a concern for the promotion of continence and the better management of incontinence.

Association for Personal Injury Lawyers (APIL)
APIL is a membership organisation for personal injury lawyers. Their website also contains guidance for individuals looking for the best injury lawyer for their particular claim.

Association of Disabled Professionals
Drawing on the expertise of disabled professionals to improve the educational and employment opportunities of disabled people
 
Association for Spinal Injury Research (ASPIRE)
ASPIRE is a registered charity formed in 1983 for rehabilitation and reintegration, and works with people who are spinaly injured to promote well-being and independence.

B


Back Up
A national charity for SCI people offering services including courses, mentoring and wheelchair skills training.

Bladder and Bowel Foundation (B&BF)
The Bladder and Bowel Foundation (B&BF) is the UK wide charity for people with bladder and bowel control problems. B&BF provides information and support services for adult patients, their families, carers and healthcare professionals. It is not funded by the Government or NHS and relies solely on the financial support of companies, individuals and grants to fund its work.
 
British Association of Spinal Cord Injury Specialists (BASCIS)
The British Association of Spinal Cord Injury Specialists is made up of senior doctors in Great Britain, Northern Ireland and Eire. They aim to improve the acute and long-term management of spinal cord injury and the training of doctors in the speciality. The following web site will give you the contact names of the leading consultants in each of the Spinal Injury Units in Britain and Ireland.
 
British Brain & Spine Foundation
The British Brain and Spine Foundation aims to improve the prevention, treatment and care of disorders of the brain and spine through research in the clinical neurosciences and education and awareness programmes.
   
The British Pain Society
The British Pain Society has a membership of over 1,550 and is involved in all aspects of pain and its management through the work of the Council, Committees and Working Parties

Bruce Wake Charitable Trust
Accessible canal and river holidays.  

C

Canine Partners
A national charity that trains assistance dogs to transform the lives of people with disabilities.  The dogs help with everyday tasks such as unloading washing machines, opening and closing doors, undressing, shopping, retrieving dropped items and fetching help in an emergency.

Cauda Equina Syndrome Resource Centre
Cauda Equina Syndrome (CES) occurs when nerves within the spinal cord have been damaged and no longer function properly. This international web site is a useful resource for finding out more about CES and inter-acting with other people who have the syndrome. 

Cauda Equina Syndrome UK Charity
This charity has been set up by people with CES and a health professional working in the field.  The website is still in development and there is a support group begun in Sheffield with the aim to develop more groups throughout the country.  

Carers Direct
Information, advice and support for carers.

 

Counselling Directory
Provide a huge UK counselling support network, the Counselling Directory enables those in distress to find an appropriate counsellor in their area. This is a free, confidential service.

D

Department for Work and Pensions
This section of the Department for Work and Pensions (DWP) website will be up-dated regularly with information about changes through the Spending Review that will affect disabled people.

Disabilinet.com
Disabilinet.com
 is the exciting new social media site just for disabled people. It is a unique community which delivers a new way to share and directly engage with fellow disabled people by posting blogs, pictures, videos, events, groups and so much more. Why use more mainstream sites when you can instantly communicate with friends safely who truly understand your interests? Developed to also launch the charitable Disabilinet Foundation, join this vibrant community today and begin making a real difference to the world of disability.

 

Disability Horizons
A free online magazine promoting a positive perspective on disability.  The magazine contains details of the achievements people have made, and allows for the sharing of life experiences as well as providing links to helpful news items and articles.

DisabledGo disabledGo logo

DisabledGo produce online access guides in a great deal of detail to a huge range of venues.

  

Disabled Living Foundation
Advice and information to help you find equipment to assist in the everyday tasks essential to independent living.

Disabledworkers Co-operative
Find the product, service or skill you need provided by a local disabled worker. Disabled workers can register their service free on the Disabled Workers Database.

Disease Conditions

A guide lists thousands of diseases and conditions sites offering Health resource - nutrition, cancer, mental health, allergies, depression, anxiety, diabetes and more.

DisabledGear.com
An internet service providing information on buying and selling second-hand used disabled equipment. 

E

Employ a PA 
Want to employ your own Personal Assistant? Don’t know where to start? This site takes you through the process step by step. All the information that you need is one place.  Plus it has a lot of examples and templates and a contract builder that allows you to construct your very own Terms of Employment. You can customise your Handbook by selecting the sections that are relevant to you and then you can print or save them to your computer. 

English Federation of Disability Sport
This is the national body responsible for developing sport for disabled people in England. 

F

 
Forum of Motability Centres
A network of 17 independent organisations covering England, Scotland, Wales and Northern Ireland, who offer information, advice and assessment to individuals who have a medical condition or are recovering from an accident or injury which may affect their ability to drive or access a motor vehicle.

Functional Electrical Stimulation (Salisbury Spinal Injury Unit)
The Odstock Dropped Foot Stimulator was developed at Salisbury. Find out more about it on their web site.

G

Gov.uk
The latest and widest range of public service information available. There's an extensive section for disabled people covering benefits, rights, education, health and support and much more.

H

Hypnotherapy Directory is a support network of UK hypnotherapists, with information on their training and experience, areas of hypnotherapy, fees and contact details. This service is free, confidential and easy to use.

I

Inclusion Scotland Directory of Disability and Equality Groups and Organisations
Inclusion Scotland is a consortium of disability organisations, individual disabled people and social partners who work towards eradicating the various barriers which prevent disabled people being fully included in society. The directory contains details of over 400 groups and organisations (mainly Scotland-based). 
 
Inclusive Fitness Initiative
A network of over 180 inclusive fitness facilities across England.
 
INSPIRE Foundation
Inspire exists to promote research into, and the development of, electronic, mechanical and medical aids to assist people with spinal cord paralysis.

International Spinal Cord Society (ISCoS)
ISCoS is a membership organisation of over 1,000 Clinicians and Scientists from 87 countries. They regularly update their knowledge at the Annual Scientific Meeting held in a different country each year.  They aim to promote the highest standard of care in the practice of spinal cord injury for men, women and children throughout the world and endeavour to foster education, research and clinical excellence.

L

Life Coach Directory
This site provides a free confidential service to help you locate a life coach.  

Living with Cerebral Palsy
A personal site sharing experiences.

Living made easy
Practical advice on daily living equipment.

M


Multidisciplinary Association of Spinal Cord Injury Professionals (MASCIP)
MASCIP is a national forum to promote standards in clinical practice, foster research and encourage service development. Open to individuals with a professional interest and activity associated with SCI.

N

Never Alone
Never Alone is a support network for all supporters and carers of loved ones, friends etc. The site is designed to offer support, via a community, whilst you provide the care to your loved one. It's somewhere for you to go to get advice/support, have fun and just get away from it all without needing to leave anyone alone.

NHS Choices
Information on conditions, treatments, local services and healthy living.

Nutritionist Resource
A website containing a wide range of nutritional information with a search facility to look for a qualified nutritionist suitable for your needs.

P

 
Prince Edward Island Council of the Disabled
The PEI Council of the Disabled was formed in 1974 by concerned people with disabilities. Its original mandate was to speak out on issues such as housing, education, employment, transportation, human rights and access to support services, all of which it continues to address today.

R

 
 RADAR
RADAR is a national network of disability organisations and disabled people who represent their members by fast-tracking opinions and concerns to policy-makers and legislators in Westminster and Whitehall, and launching its own campaigns to promote equality for all disabled people. RADAR has also produced a holiday guide book - Accessible Holidays in the British Isles - available from the above website, with an online version available at www.radarsearch.org
 
RAF Benevolent Fund (RAFBF)
RAFBFThe RAF Benevolent Fund provides financial and practical assistance to anyone who is serving, or has ever served in the RAF, and their partners and dependants. It offers grants, care and mobility services to individuals, as well as funding large-scale projects such as RAF childcare centres, debt advice services and relationship counselling.
Telephone: 020 7580 8343
Email: info@rafbf.org.uk 

RAF Disabled Holiday Trust (RAFDHT)

The aim of the Trust is to make it possible for both serving and ex-Royal Air Force personnel and their dependants with a severe disability to take holidays in the UK and abroad on equal terms with able bodied people.
Telephone: 0207 3073 303
Email: admin@rafdht.org.uk

Rica
Rica (was Ricability) is an independent consumer reseach charity providing free, practical and unbiased reports for older and disabled people. The reports, which focus on Mobility, At Home, Parenting, Personal Care and Consumer Rights, are available in full on the website, and some are also available in hard copy.

Rough Riderz
Four wheeled mountain biking club for wheelchair users. Perfect for adrenaline junkies who like nothing more than throwing themselves down a muddy hill at very fast speeds.

S


SCI Therapies
Icelandic Health Authorities and the World Health Organization (WHO) with the support of the Council of Europe have launched an international effort to accumulate information on various therapies and procedures that have the potential to restore function in people who have sustained a spinal cord injury (SCI).
 
Shaw Trust
Shaw Trust is a national charity that provides training and work opportunities for people who are disadvantaged in the labour market due to disability, ill health or other social circumstances. We are the largest UK provider of employment services for disabled people.

SIA Merseyside Group
A self-help support group, providing mutual help for its members. It was formed in 1995 as a Local Group under the rules and regulations set down by the Spinal Injuries Association (SIA)

Simon Paul Foundation
The Foundation aims to assist younger people living in the north-west Kent area who've become physically disabled as a result of serious illness or accident

Shropshire Disability Network
Formed in 2008 to provide a powerful collective voice for disabled people across Shropshire.

Southern Spinal Injuries Trust
A regional charity set up to support the the Duke of Cornwall Spinal Treatment Centre and people with spinal cord injury in the South and South West of England. 

 

Spinal Cord Injuries Australia
Spinal Cord Injuries Australia was formed as the Australian Quadriplegic Association in September 1967 to provide suitable accommodation for young people with severe spinal cord injuries. Our services have expanded as the need and opportunity arose. We now extend our services to all people with physical disabilities.

Spinal Cord Tumour Forum
The Spinal Cord Tumour Forum is a support group for people living in the UK who have had, or whose lives have been affected by, benign spinal cord tumours. It was created and is run by spinal cord tumour sufferers. The website contains a forum plus information on spinal cord tumours, personal stories and news updates. We arrange meetings twice a year in London and run an annual survey about how people who suffer from these tumours have been affected.
 
Spinal Injuries Scotland (SIS)
Information and support for spinal cord injured people in Scotland.

Spinal Injury Northern Irleand
A charity providing support to SCI people in Northern Ireland.  They raise money for equipment and have a free hire service for people requiring a hoist on a social basis eg hotel breaks, overnight stays etc.

Spinal Research
Spinal Research exists to fund research with the sole aim of ending the permanence of paralysis caused by spinal cord injury.

Spinal Unit Action Group (SUAG)
Phone: 01704 567969
Assists and supports patients and ex-patients of the North West Regional Spinal Injuries Centre based at Southport.

Sportability
Sportability provides free sports and other challenging pursuits to effect positive psychological and physical change, re-building self-esteem and confidence for the spinally injured. We provide a number of fun activities including Quad Biking, Sailing, Archery, Shooting, Snow Mobiles and Falconry.

 

T

Tees Wheelyboats Club
The Wheelyboat is specifically designed to allow roll-on/roll-off wheelchairs and thus gives access to the river for disabled people – on the 12 miles of river Tees.  The club was established in 2010 and with local support has been very successful, they are currently in the process of purchasing a Wheelyboat for permanent operation on the Tees.

The Spinal Cord Injury Zone
This site contains a wide variety of resources for people living with spinal cord injury and is upated almost daily with the latest spinal cord injury news articles.  

Therapy Directory
This site allows you to look for a complementary therapist in your area who is properly registered and qualified. 

Tourism for All
A registered charity providing a wide range of travel and holiday information for disabled people. Up to three Holiday factsheets are sent free of charge, with postal charges being applied for anything over and above this amount.

Transhouse (Oswestry)
Transitional Housing for Spinal Cord Injured People (Transhouse), is a housing charity that provides specialist short term accommodation for people who have sustained serious spinal cord injury.

Transverse Myelitis Society
The Transverse Myelitis Society was set up in 2004 to help people in the U.K. affected by TM and its associated neurological conditions. They now have around 1000 members and support groups around the country, including Scotland, Wales and Northern Ireland, a list of which can be found on their website.

 

 U


UK Spinal Cord Injury Research Network
The UK Spinal Cord Injury Research Network promotes and organises multi-centre clinical research with spinal cord injured people to improve their health care and well being.

W

WheelPower
To create opportunities for people in wheelchairs wishing to take part in competitive sport.

Wheelyboat Trust
The Wheelyboat Trust is a small national charity that helps public waters, groups and organisations acquire wheelchair accessible Wheelyboats for disabled people to use for angling, pleasure boating, nature watching, etc.

 

Write to SIA:

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2 Trueman Place

Oldbrook, Milton Keynes

MK6 2HH

United Kingdom

sia@spinal.co.uk

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