Why we collect your personal information

Please use the links below to find out more about when and why we collect your personal information and how we process it.

Membership
Advice Line
Advocacy Service
Specialist Nurse Service
Peer Support Service
SIA Healthcare
SIA Case Management
When you make a donation to SIA or support our Fundraising
When you attend our training events
On our website

Membership

If you join SIA as a full member we will ask you for your name and contact details. We will also ask if you have a spinal cord injury because full membership of SIA is only available to people with spinal cord injuries. We can only process your membership if you choose to give us this information.

We will also ask you about the nature of your injury, its cause, and where you received your initial treatment. You do not have to provide this information, but if you choose to do so, it will help SIA to understand more about its members, the availability of treatment at different locations, and to improve our services.

We’ll store your data securely on our membership database. You can tell us your preferences for the services and activities you want to be informed about and you can restrict the data we hold or withdraw your consent at any time by contacting us using the details on our website.

Advice Line

Whether or not you’re a member of SIA, you can call our Advice Line for guidance. Our Advice Line Officer can help you understand more about spinal cord injury and provide the support and practical information you need for day to day living. If you contact our advice line, you may choose to provide details of a personal nature (sensitive data) about you or about someone else’s health. Only members of the SIA team who provide support services will be able to use this data. They will not pass personal information on to anyone else without your consent except in exceptional circumstances to comply with the law. Your personal information and details of your enquiry will be recorded and stored on a secure database for the purposes of progressing your query.  We will always explain why we need this data to best answer your query and support your longer term needs (if appropriate). If another organisation can assist in your case, for example the NHS or another treatment provider, we will ask for your consent before we refer your case to them. If you are not a SIA member, we will only retain your data for as long as is reasonable to resolve your enquiry or issue. You can withdraw your consent at any time by contacting us using the details on our website.

Advocacy Service

Our Advocacy service is only available to SIA members. As a membership-led Charity, we want to ensure that our members have the support that they need on a wide range of issues that might affect them as SCI people. It’s part of our contract with you as a member. This might involve you asking us to act on your behalf to resolve a dispute about the services, care or benefits you receive, or advocate for you on any number of other issues. Your personal information and details of your case or dispute will be recorded and stored on a secure database. If we need to refer any sensitive data to other organisations to resolve an issue, we will tell you who is involved in the referral and why, and we will ask for your consent first. You can withdraw your consent at any time by contacting us using the details on our website.

Specialist Nurse Service

Our SCI  Specialist Nurse Service is only available to SIA members.  If you contact our nurses, you may choose to provide details of a personal nature about you or someone else’s health. Only members of the SIA team who provide support services will be able to use this data. They will only use this sensitive information to respond to your request for assistance. They will not pass this on to anyone else without your consent, except in exceptional circumstances to comply with the nurses’ code of professional conduct or the law. If you are referred to SIA by another organisation, for example the NHS or another treatment provider, we will tell you the source of the referral, and any personal information about you will be treated in accordance with Data Protection Law. You can withdraw your consent for us to use this data at any time by contacting us using the contact details on our website.  If for any reason you want information removed from these records, please contact us using the details on our website.

Peer Support Service

Whether or not you’re a member of SIA, you can contact your regional Peer Support Officer or you can request via our website that they contact you. They provide one-to-one support, practical help and advice, encouragement and a listening ear. They can also support your family members and friends, allowing them to talk through the impact of a spinal cord injury with someone who understands and who can signpost them to sources of help and information. Peer Support can be a long lasting relationship, to help ensure your transition back into the community is as smooth as possible. If you become a SIA member, our Peer Support service is there for life after spinal cord injury.

When you use our Peer Support service, you may choose to provide details of a personal nature about you or someone else’s health. Only members of the SIA team who provide support services will be able to use this data. They will only use this sensitive information to provide you with support and advice. They will not pass this information on to anyone else without your consent, except in exceptional circumstances to comply with the law. If you are referred to us by another organisation, for example an NHS provider or a Spinal Cord Injury Centre, we will tell you the source of the referral and any personal information about you will be treated in accordance with Data Protection Law. You can withdraw your consent at any time by contacting us using the details on our website. Your data will be held securely and retained for as long as you use our services. If you choose not to use our Peer Support service we will delete any securely held data in accordance with our data retention schedules. If you become a SIA member we may retain data about your support on your membership record as part of our commitment to life-long support to our members.  If for any reason you want information removed from these records, please contact us using the details on the website.

SIA Healthcare

SIA Healthcare is our home delivery service for all your prescription medication and equipment needs. The service is provided for us by Bullen Healthcare. They are our trusted suppliers who we have carefully selected to work on our behalf.

If you are a member, SIA will approach you and ask if you are interested in using SIA Healthcare. Your data will only be used by Bullen Healthcare if you say you are interested in using the SIA Healthcare service.

Our contract with Bullen Healthcare requires them to comply with Data Protection Laws and ensure that they have appropriate controls in place to secure your information. We monitor the services that they provide and we make sure that they store the data securely, delete it when they no longer need it and never use it for any other purposes.

SIA Case Management

SIA Case Management is a specialist case management service for spinal cord injured people who have a personal injury settlement. It is provided for us by Bush & Co Rehabilitation. They are our trusted suppliers who we have carefully selected to work on our behalf.

Service users will generally be referred to SIA Case Management by their legal representatives. Our contract with Bush & Co requires them to comply with data protection laws and ensure that they have appropriate controls in place to secure your information. We monitor the services that they provide and we make sure that they store the data securely, delete it when they no longer need it and never use it for any other purposes.

When you make a donation to SIA or support our Fundraising

If you take part in one of our fundraising events, we will need to use your information to contact you about event participation details, your fundraising and using images of the event that you may appear in. We will ask you about this as part of the terms and conditions for entry, along with any specific requirements (such as safety) that relate to the particular event.

If you have been a participant in one of our fundraising events, purchased our products or made a donation, we would like send you information about how your money has helped support spinal cord injured people, future fundraising events, products and campaigns. We will ask you for permission, and at any time after that, you can tell us about changes to your preferences for receiving such information, or stop receiving it all together by using the details on the website or on all of our fundraising communications.

To make sure that we send you the most appropriate material, we don’t send all of our communications to every supporter. We make decisions about selecting supporters for communications based on the information supplied by you and our general experience of supporter preferences.

We correct postal addresses on our database using the Royal Mail’s Postal Address File via a service provided by PCA Predict. We also exclude addresses from mailings where  Royal Mail has returned post marked ‘Addressee Gone Away’. To avoid causing distress to bereaved people, we compare our data with the Bereavement Register and the Mortascreen database via a service provided by Data8. We only use these organisations as an information source and we don’t allow them to use any of your data for anything else.

If you use your credit or debit card to donate to us or buy something over the phone or by post, we will ensure that this is done securely and in accordance with the Payment Card Industry Data Security Standard. You can find our more information about PCI DSS here – https://www.pcisecuritystandards.org/security_standards/index.php

We do not store your credit or debit card details once we have completed your transaction. All card details and validation codes are securely destroyed once the payment or donation has been processed. Only staff authorised and trained to process payments will be able to see your card details.

If you make a credit or debit card payment on our website, the transaction is processed by our suppliers Paypal or Stripe under their data protection policies. SIA does not receive your card details.

If we receive an email containing any credit or debit card details, it will be immediately deleted, no payment will be taken and you will be notified about this.

If you make donation by direct debit, we will store your bank detail securely in order to process your payments.

When you attend our training events

Our training courses are attended by healthcare and legal professionals, carers, and personal assistants to SCI people. If you contact us to attend a training event we will ask for your personal information in order to facilitate your attendance at the training event.

We will ask if you want to be informed about future training courses we are offering in your area (both geographical and in your area of expertise). You can opt out of receiving this information at any time using the details on the website.

If you use your credit or debit card to pay for training online or over the phone or by post, we will ensure that this is done securely and in accordance with the Payment Card Industry Data Security Standard. You can find our more information about PCI DSS here – https://www.pcisecuritystandards.org/security_standards/index.php

We do not store your credit or debit card details once we have completed your transaction. All card details and validation codes are securely destroyed once the payment or donation has been processed. Only staff authorised and trained to process payments will be able to see your card details.

If we receive an email containing any credit or debit card details, it will be immediately deleted, no payment will be taken and you will be notified about this