NHS Care Cuts Campaign

Issue

NHS Continuing Healthcare is an NHS-funded package of care that is intended to support people with the highest healthcare needs to live independent, healthy and fulfilled lives once they are outside of the hospital environment.

For several years, both national and local austerity measures have seriously affected the ongoing care and support services that many spinal cord injured individuals (SCI) need to lead independent lives.  SCI people report reductions in the care and support they receive, with vital night cover frequently stopped or reduced. Arbitrary caps are being place on personal funding, which threaten to force SCI people to leave their communities and be imprisoned in nursing homes.

These cuts are resulting in potentially dangerous NHS Continuing Healthcare packages.   This is extremely worrying, as spinal cord people should have the very best bladder, bowel, skin and respiratory management, etc.  Only with such care can they lead the fully independent lives that they deserve.

Campaign

We are campaigning hard for positive change in NHS Continuing Healthcare provision.  Alongside Back Up and Aspire, our landmark report – ‘More than a Number’ – was published in December 2019 and calls for urgent action to address our serious concerns in how the NHS funds care for severely disabled people, as many SCI people are still not getting this essential care.

‘More than a Number’ describes the impact on people’s lives of an NHS Continuing Healthcare assessment process that is open to local interpretation, and often framed with the aim of cutting expenditure.  Regional variations in eligibility are common, lengthy delays in assessments all too frequent and the appeals process burdensome.  Additionally, NHS decision makers want to reduce expenditure on Continuing Healthcare by £855 million by the end of the financial year 20/21, which the House of Commons Public Accounts Committee has said will put patient safety at risk.

The charities are demanding that:

  1. Care and support packages must meet people’s needs and aspirations

Commissioning by Clinical Commissioning Groups (CCGs) of NHS Continuing Healthcare (CHC) care and support packages must meet all of that person’s assessed health and associated care needs and be in their preferred setting.

  1. Eligibility decisions must be legal and comply with the Care Act

Decisions on eligibility for NHS Continuing Healthcare by Clinical Commissioning Groups must be consistent with primary legislation, case law and statutory guidance.

  1. Clinical Commissioning Groups must be held to account

Oversight of the delivery of CHC must be independent and effective and include meaningful sanctions for those organisations found to be failing.

The consequences of poor care for SCI people are devastating. The case studies featured in the report highlight the severe health consequences – including the risk of death – when care packages are arbitrarily reduced and take months or even years to get reinstated. As one case study commented. “It was as if my life didn’t matter, just the pennies.”

Download the report here. 

Thank you to solicitors Leigh Day for all their help in supporting the publication of ‘More than a Number’.