T4 T5 with a Colostomy bag

Started by Anonymous, 12th March 2018 at 12:19 pm

Home Page Forums Living With Spinal Cord Injury Continence Matters T4 T5 with a Colostomy bag

  • #16329

    Hi, I am posting this on behalf of my husband.  He had an emergency bowel op late last year and had to have a colostomy.  I am just sending this message in the hope there might be others on this site who have a stoma and what problems they have had if any with diet.  I am wondering whether because he is paralysed T4 T5 and prior to the op had a slow digestive transit whether certain foods are best avoided.

    Regards,

    Cheryl

     

     

     

    #16427

    <div style=”color: #000000; font-family: UICTFontTextStyleTallBody; font-size: 23px; -webkit-text-size-adjust: auto;”>Hi Cheryl

    My name is Paul Phillips, I have a spinal cord injury at C4/5 so I am a higher level than your husband. <span style=”background-color: rgba(255, 255, 255, 0);”>I suffered my spinal-cord injury in November 2012 and unfortunately my bowels ran my life. I had several impacted bowels which can be life-threatening and had bowel </span><span style=”background-color: rgba(255, 255, 255, 0);”>accidents most days.  </span>I’ve had a stoma since November 2016 and can honestly say it’s the best thing I have done.</div>
    <div style=”color: #000000; font-family: UICTFontTextStyleTallBody; font-size: 23px; -webkit-text-size-adjust: auto;”></div>
    <div style=”color: #000000; font-family: UICTFontTextStyleTallBody; font-size: 23px; -webkit-text-size-adjust: auto;”>Before I had the operation I saw a Stoma Nurse, she explained to me about my diet and that I might find food I enjoyed before may disagree with me after the operation however I haven’t found anything that I can’t eat. I have kept a good balanced diet and eat a lot of vegetables. I have also been able to come off all the laxatives I was on before and just monitor my output.</div>
    <div style=”color: #000000; font-family: UICTFontTextStyleTallBody; font-size: 23px; -webkit-text-size-adjust: auto;”></div>
    <div style=”color: #000000; font-family: UICTFontTextStyleTallBody; font-size: 23px; -webkit-text-size-adjust: auto;”>I hope this helps…</div>
     

    #16439

    Thanks for getting back to me Paul. It is good to know that having a stoma has made a difference in a positive way to your life.  My husband also finds bowel care a lot more easier now than before and we also eat a balanced diet.  It is nice though to be in contact with other people who have gone through the same procedure and are also spinal injured.

    Regards,

    Cheryl

    #18433

    i   have  had  bladder /bowel  problems  for some time .   I  had compaction as result of   regular  use antibiotic for uti  .   my bowel   were fine till about 2yrs ago  and took me  while to see   specialist   to identity  i  suffering from hemorrhoids   and   muscles wasting   losing ability to close bowel properly.

    A consultant in  Bristol try to rush me into  having a colostomy  , at time when i having very few bowel accident .   improving my  diet help  reduce the  accident  and  better bowel  evacuation routine   help me  regain my  confidence to  go out .

    Now 2yrs later  i aging with shoulder/arm  injury ,   confine  me indoor  most weeks  – my   bowel accidents are back again .   I  will  need  to seek advice ,do i go down  path of  colostomy??

     

    #18464

    <span style=”background-color: rgba(255, 255, 255, 0);”> i’ve had my colostomy since 2016 and haven’t looked back since. Before I had it done I had bowel accidents most days, my routines could take between 4–6 hours, I had no confidence in going out and I suffered from anxiety.  I explored all possible alternatives include different suppositories and the peristeen before deciding on the stoma.  Have you tried either of these?The peristeen worked for a short amount of time before it stopped working and I continued having problems.

    I’m now free to go out whenever I want without having to worry about my bowels. I can get up at whatever time I want, however early or late and not need to think about a 4 to 6 hour routine and PAs having to get up ridiculously early to start. It takes five minutes to change which is great and I have a much better quality of life. Obviously there are some downsides like at the moment I have a loop colostomy and it has prolapsed. I’ve been told this is not dangerous and it will continue to work it just doesn’t look great. I would need another operation for them to change it to an end colostomy however I’m keen to avoid another operation so have chosen to leave it. There is two different types including a loop and end colostomy one being permanent and the other is reversible if you have big problems. The other thing to bear in mind is i was told by a stoma nurse you may still have mucus coming out of your anus and this is different for each individual. Personally it doesn’t happen but my stoma Nurse said that could change in the future. Having a good diet is a good idea but I have found I can eat pretty much whatever I like and it works fine. Personally I think it’s the best thing I’ve had done since my accident and it has made an incredible difference to my life and my independence. I hope this helps you and your decision.
    All the best
    Paul
    </span>

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